Mama Zebra
Content about chronic illness & Disney EDS, POTS, MCAS, CCI, Chiari, TC
Etsy
Etsy
TikTok
TikTok
Instagram
Instagram
Bluesky
Bluesky
YouTube
YouTube
Links
Shop
Places to Give
Give Kids The World Village | Top-Rated Charity |
Give Kids The World Village | Top-Rated Charity |
Give Kids The World Village is an 89-acre, nonprofit resort in Central Florida that provides weeklong, cost-free vacations to children with critical illnesses and their families.
Volunteer - Make a Difference | Foster Love
Volunteer - Make a Difference | Foster Love
Volunteer with Foster Love and support foster children and families through various activities. Make a positive impact on their lives today!
Animal Rescue League of Boston
Animal Rescue League of Boston
The Animal Rescue League of Boston is an unwavering champion for animals in need, committed to keeping them safe and healthy in habitats and homes.
Because No Child Should Live Alone in Pain.
Because No Child Should Live Alone in Pain.
Endometriosis Research Center | Endometriosis Treatment Info
Endometriosis Research Center | Endometriosis Treatment Info
Endometriosis Research Center | a 501(c)3 Tax-exempt, Tax-deductible Organization Founded in 1997
InclusiVibe™ Foundation | Advancing Equity in Music & Healthcare
InclusiVibe™ Foundation | Advancing Equity in Music & Healthcare
The InclusiVibe™️ Foundation is a nonprofit in formation advancing equity in music and healthcare. Founded by EDS quadriplegic violinist Amy Wang-Hiller, Susan Chalela, MPT, and composer Janice Shein, we champion disabled artists, patient storytelling, and rare disease research through adaptive conc
My Top Links
Mama Zebra Designs Shop
Mama Zebra Designs Shop
From handmade products to designed apparel, you'll find plenty of Zebra Pride in the Mama Zebra Designs Shop! Whether you're a member of the trifecta - EDS, POTS, MCAS - or a fellow disabled Disney fan, you're sure to find something that represents our little corner of the internet
Mama Zebra
Mama Zebra
Hi, I’m Kelsey! I have a genetic connective tissue disorder, Ehlers Danlos Syndrome (EDS) I am always looking forward to my next opportunity to forget all that with a trip to Disney! On my channel, you’ll find a mix of content from vlogs, to life hacks, to living life to the fullest in a disabled body. I am also an adoptive mom of 3, a brain surgery survivor, a former teacher, a crafter, and a cat mom. Welcome to my channel, I hope you stick around! My diagnoses: hEDS, POTS, MCAS, gastroparesis, tethered cord, Chiari malformation, CCI Check out more on my Linktree: https://linktr.ee/mamazebradesigns
My website
My website
How to Prepare for your Out-of-State Surgery for Endometriosis
How to Prepare for your Out-of-State Surgery for Endometriosis
10 weeks ago, I had my second out-of-state excision surgery for Endometriosis. Surgery itself can bring on a little anxiety of the unknown (What will the hospital be like? Will they find...
11 Tips for Laparoscopic Surgery Recovery
11 Tips for Laparoscopic Surgery Recovery
As some of you might know, I had emergency gallbladder surgery last week, just 10 weeks after my excision surgery for endometriosis. This makes 5 surgeries in just over 2 years, which feels like...a...
Disability Information Card by Mama Zebra Designs — Mama Zebra
Disability Information Card by Mama Zebra Designs — Mama Zebra
Traveling with a disability is hard enough...make communicating your needs a breeze with this quick and easy printable download! The Disability Information Card PDF by Mama Zebra Designs includes 4 options. Whether you want to communicate in your own words, or use the included checklist, make asking
Medical One Sheet by Mama Zebra Designs — Mama Zebra
Medical One Sheet by Mama Zebra Designs — Mama Zebra
Monthly Achievement Chart by Mama Zebra Designs — Mama Zebra
Monthly Achievement Chart by Mama Zebra Designs — Mama Zebra
After two years, this system is the one that stuck! Behavioral therapists and in home clinicians have raved about the Monthly Achievement Chart by Mama Zebra Designs, and now, it’s here in an easy, instant download for YOU to try in your own home. Simple download, print, and laminate! The best par
Mama Zebra Writes — Mama Zebra
Mama Zebra Writes — Mama Zebra
Thoughts and stories of living with Ehlers Danlos Syndrome. Bring your popcorn because life with chronic illness and disability is never dull, but sometimes lonely. Let's get through this together!
TCAPP - send a Smile
TCAPP - send a Smile
Urgent need
Support Grace’s Tethered Spinal Cord Neurosurgery
Support Grace’s Tethered Spinal Cord Neurosurgery
Hi everyone! My name is Wade, and I’m starting this GoFundMe for my wife, … Wade Burr needs your support for Support Grace’s Tethered Spinal Cord Neurosurgery
Donate to Josie's Journey: Overcoming Health Challenges, organized by Kamryn Perigo
Donate to Help Ayla Rae and Family Through Tough Times, organized by Michelle Holeman
Donate to Help Ayla Rae and Family Through Tough Times, organized by Michelle Holeman
******Update***** As many of you know, Ayla Rae arrived e… Michelle Holeman needs your support for Ayla Rae’s Journey: Progress, Gratitude, and Continued Supp
Ways to donate and help flood victims in Western North Carolina after Hurricane Helene
Ways to donate and help flood victims in Western North Carolina after Hurricane Helene
Blue Ridge Public Radio compiled a list of more than 35 organizations providing relief in the area.
Operation Olive Branch - Google Drive
Operation Olive Branch - Google Drive
Donate to Urgent Appeal: Evacuate My Family from Gaza, organized by Yasin Abu Shaban
Donate to Urgent Appeal: Evacuate My Family from Gaza, organized by Yasin Abu Shaban
Donate to Urgent apeal to help almasharawi family leave Gaza, organized by Heba almashharawi
Donate to Urgent apeal to help almasharawi family leave Gaza, organized by Heba almashharawi
Help Violinist Amy’s Lifesaving Skull-Neck Surgery, organized by Amy Wang-Hiller
Help Violinist Amy’s Lifesaving Skull-Neck Surgery, organized by Amy Wang-Hiller
For the Tatas
A Bra That Fits Calculator
A Bra That Fits Calculator
A Bra That Fits Community
A Bra That Fits Community
Ewa Michalak Polish Bras
Ewa Michalak Polish Bras
Miseczki - Polish Bra seller
Miseczki - Polish Bra seller
Bras | Polish Bras | Levana Bratique | bras in every shape and size
Bras | Polish Bras | Levana Bratique | bras in every shape and size
Wildflower Intimates
Wildflower Intimates
Bras, Swimwear & Lingerie for Women | Bare Necessities
Bras, Swimwear & Lingerie for Women | Bare Necessities
Bravissimo | Bras, Lingerie, Swimwear
Bravissimo | Bras, Lingerie, Swimwear
Brastop
Brastop
DAS
Disney DAS class action complaint_FINAL_.pdf
Disney DAS class action complaint_FINAL_.pdf
McCune Law Group | Class Action lawsuit Malone v. Disney
McCune Law Group | Class Action lawsuit Malone v. Disney
'I'm disappointed in Disney': Advocates urge Disney restore disability access rules
'I'm disappointed in Disney': Advocates urge Disney restore disability access rules
Disney cut back accommodations. What’s it like to attend while disabled?
Disney cut back accommodations. What’s it like to attend while disabled?
Disney DAS Defenders | Facebook
Disney DAS Defenders | Facebook
Support proposed legislature in Florida - write to Representatives for 2024 - 2026
Support proposed legislature in Florida - write to Representatives for 2024 - 2026
Disneyland’s adjusted disability pass upsets some | On Your Side
Disneyland’s adjusted disability pass upsets some | On Your Side
Walt Disney World Accessibility Planning Guide
Walt Disney World Accessibility Planning Guide
Disneyland Accessibility Planning Guide
Disneyland Accessibility Planning Guide
Disney World fans slam theme park's new Disability program
Disney World fans slam theme park's new Disability program
Disney's Disability Problem: DAS Pass Accessibility
Disney's Disability Problem: DAS Pass Accessibility
Disability & Civil Rights Program | Anaheim, CA - Official Website
Disability & Civil Rights Program | Anaheim, CA - Official Website
You’re a Tourist - Traveling with a Disability with Jennifer Kumiyama
You’re a Tourist - Traveling with a Disability with Jennifer Kumiyama
When Bob Iger Replied: Unpacking the New Disney DAS Rules
When Bob Iger Replied: Unpacking the New Disney DAS Rules
“Return to Queue” Database Menu
“Return to Queue” Database Menu
Sign the Petition - Stop excluding disabled people from Disney Parks with new policy
Sign the Petition - Stop excluding disabled people from Disney Parks with new policy
Americans with Disabilities Act Title III Regulations
Americans with Disabilities Act Title III Regulations
Department of Justice: ADA: File a Complaint
Department of Justice: ADA: File a Complaint
File A Complaint | My Florida Legal | Florida Attorney General
File A Complaint | My Florida Legal | Florida Attorney General
Email Disney Guest Services
Email Disney Guest Services
TikTok Video Of Diababled Guest Denied DAS And Asking For A Paid Alternative Goes Viral
TikTok Video Of Diababled Guest Denied DAS And Asking For A Paid Alternative Goes Viral
Video Goes Viral of Disabled Guest Pleading with Disney to Offer Paid Alternative When Denied DAS Access - WDW News Today
Video Goes Viral of Disabled Guest Pleading with Disney to Offer Paid Alternative When Denied DAS Access - WDW News Today
USA Today article: ‘Imagine something': Disabled Disney guests demand action after DAS program changes
USA Today article: ‘Imagine something': Disabled Disney guests demand action after DAS program changes
Giving Back
Support Research and honor or founder Jon R.
Support Research and honor or founder Jon R.
InclusiVibe
InclusiVibe
Make A Difference Today - The Coalition Against Pediatric Pain
Make A Difference Today - The Coalition Against Pediatric Pain
EDS Resources
Home - The Ehlers Danlos Society
Home - The Ehlers Danlos Society
Living Life to the Fullest With Ehlers-Danlos Syndrome
Living Life to the Fullest With Ehlers-Danlos Syndrome
Physical Therapy - The Ehlers Danlos Society
Physical Therapy - The Ehlers Danlos Society
Ehlers Danlos Support Groups - Pain Support Groups | EDSAwareness.com
Ehlers Danlos Support Groups - Pain Support Groups | EDSAwareness.com
Mast Cell Activation
About MCAS | Mast Cell Action
About MCAS | Mast Cell Action
Mast Cell Activation Syndrome (MCAS)
Mast Cell Activation Syndrome (MCAS)
ASCIA Position Paper - Diagnosis and Investigation of Mast Cell Activation Disorders and Syndrome - Australasian Society of Clinical Immunology and Allergy (ASCIA)
ASCIA Position Paper - Diagnosis and Investigation of Mast Cell Activation Disorders and Syndrome - Australasian Society of Clinical Immunology and Allergy (ASCIA)
Chiari Malformation
Conquer Chiari
Conquer Chiari
Chiari EDS Center
Chiari EDS Center
Video Library – Bobby Jones CSF - Chiari, CCI,
Video Library – Bobby Jones CSF - Chiari, CCI,
Chiari 1 Malformation: A Primer, Paolo Bolognese, MD, December 19, 2024
Chiari 1 Malformation: A Primer, Paolo Bolognese, MD, December 19, 2024
Intracranial Hypertension & Jugular Compression at C1 Craniocervical Instability -Paolo Bolognese MD
Intracranial Hypertension & Jugular Compression at C1 Craniocervical Instability -Paolo Bolognese MD
Dr. Paolo Bolognese presents Chiari I Malformation, EDS, and Craniocervical Instability
Dr. Paolo Bolognese presents Chiari I Malformation, EDS, and Craniocervical Instability
Chiari-Related Diseases – Bobby Jones CSF
Chiari-Related Diseases – Bobby Jones CSF
Tethered Cord Syndrome
Tethered Cord Syndrome - Symptoms, Causes, Treatment | NORD
Tethered Cord Syndrome - Symptoms, Causes, Treatment | NORD
Tethered Spinal Cord Syndrome – Causes, Diagnosis and Treatments
Tethered Spinal Cord Syndrome – Causes, Diagnosis and Treatments
Symptoms and Management of Tethered Cord - The EDS Society
Symptoms and Management of Tethered Cord - The EDS Society
Petra M. Klinge, MD, PhD - Brown Neurosurgery
Petra M. Klinge, MD, PhD - Brown Neurosurgery
Occult Tethered Spinal Cord - Dr. Petra Klinge 2018 CSF Disorders Symposium
Occult Tethered Spinal Cord - Dr. Petra Klinge 2018 CSF Disorders Symposium
POTS
Dysautonomia International: Postural Orthostatic Tachycardia Syndrome
Dysautonomia International: Postural Orthostatic Tachycardia Syndrome
Postural Tachycardia Syndrome (POTS)
Postural Tachycardia Syndrome (POTS)
Endometriosis
Endometriosis Research Center
Endometriosis Research Center
Meet Dr. Ken Sinervo — The Center for Endometriosis Care
Meet Dr. Ken Sinervo — The Center for Endometriosis Care
RESTORE - Center for Endometriosis
RESTORE - Center for Endometriosis
Ask Me About My Endo
Ask Me About My Endo
Nancy’s Nook: informational Endo FB group
Nancy’s Nook: informational Endo FB group
Life Hack Products
TouchPoints with Wristband
TouchPoints with Wristband
Amazon.com: Mighty 3 Spotify & Amazon Music Player - Compatible with Bluetooth & Wired Headphones - 1,000+ Song Storage - Screen Free Music Player - No Phone Needed - (Blue) : Electronics
$114.99
curble Grand, Ergonomic Chair Back Support, Lumbar Support for Good Posture Correction and Back Pain Relief, Perfect for Office Chair, Floor Seat, and Work from Home
$79.98
ROSELYNBOUTIQUE Gua Sha Facial Tools Face Roller Healing Crystal - Guasha Massager Tool (Jade) : Health & Household
$14.95
LMNT Zero Sugar Hot Chocolate or Coffee Mixer - Chocolate Caramel Salt | Drink Mix | 30 Count : Health & Household
$45
Amazon.com | Brooks Women’s Adrenaline GTS 23 Supportive Running Shoe - White/Black - 9 Medium | Road Running
Logitech ERGO K860 Wireless Ergonomic Qwerty Keyboard
$129.99
Strongtek Under Desk Footrest
$34.99
Love: de la Peña, Matt, Long, Loren
TheraICE Ankle Ice Pack Wrap for Swelling, Reusable Ankle Ice Pack for Sprained Ankle Injuries
$29.95
GuaSha Stone - large
$9.99
Amazon.com: DOCTOR LIFE LX9max - Sequential Air Compression Recovery System : Device + Legs (L), FSA-HSA Approved : Health & Household
$499.99
LMNT Hot Chocolate and Coffee Mixer - Chocolate Caramel Salt Electrolytes | Hydration Powder Packets | No Sugar or Artificial Ingredients | Keto & Paleo Friendly | 30 Sticks
$45
Medi Ribbed Lymphpads
$73.47
Med Spec ASO Ankle Stabilizer
$31.88
Doctor Life Full Body Pneumatic Pump system
$499.99
Bioflect® Compression Shorts with Bio Ceramic Micro-Massage Knit
$44.99
Bioflect® Compression Arm Sleeves Wrap
$48.50
Pure Enrichment® PureRadiance™ Ultra-Wide Luxury Heating Pad for Cramps & Back Pain
$49.99
Renpho Heating Pad for Back
$37.99
Amazon.com | Amazon Basics 4 Piece Packing Travel Organizer Zipper Cubes Set, Medium, Black | Packing Organizers
$17.45
Pillows
4 products
Why Am I Me?: Paige Britt, Sean Qualls
Living Life to the Fullest with Ehlers-Danlos Syndrome: Guide to Living a Better Quality of Life While Having EDS: Muldowney Pt, Kevin, Muldowney Pt, Kathleen: 9781478758884: Amazon.com: Books
$49.95
Bissell SpinWave Electric Mop
$104.90
Just Ask!: Be Different, Be Brave, Be You: Sotomayor, Sonia, López, Rafael
Liquid IV Hydration Multiplier
$19.49
VIM&VIGR: Cotton Compression Socks (20-30 mmHg)
Cordelia: Nelson-Schmidt, Michelle
Simple Modern 40oz Tumbler
$29.99
Water Tracking Hospital Mug
$17.95
Hot Tools 24K Gold One Step Hair Dryer and Volumizer
$35.99
Amazon.com: Voltaren Arthritis Pain Gel for Powerful Topical Arthritis Pain Relief - NEW Easy Open Cap - 100 g Tube And 20 g Travel Size Tube : Health & Household
$18.48
Tymo Straightening Comb
$49.99
Dr. Teal's Epsom Salt soak
$5.58
Mama Zebra Reads
7 products
How Many Marbles Do YOU Have?
Amazon.com: LMNT Zero Sugar Hot Chocolate or Coffee Mixer - Chocolate Salt | Drink Mix | 30 Count : Health & Household
$45
Apple AirPods Pro (2nd Gen) Wireless Earbuds
$215.99
Futuro Compression Stabilizing Wrist Brace
$20.84
DonJoy Sacroiliac (SI) Joint Support Belt
$79.99
Leukotape P Sports Tape and Cover-roll
Therapeutica Cervical Orthopedic Foam Sleeping Pillow
$86.32
POTS
11 products
Flare Day Tips
29 products
Opsite Flexifix
$17.96
DonJoy Sully Shoulder Support
$152.40
Mommy Has To Stay In Bed
Bioflect Compression Leggings with Micromassage
Travel Tips
11 products
LOVTRAVEL LED 660nm Red Light Therapy Mat 850nm Near Infrared Light
$479.99
Futuro Night Wrist Support
$26.40
Ace Sleeping Brace for Wrist
$22.54
Tomorrow I'll Be Brave: Hische, Jessica, Hische, Jessica: 9781524787011: Amazon.com: Books
Amazon.com: Solawave 4-in-1 Radiant Renewal Wand, Face Skincare Wand with Facial Massager, Facial Wand (Rose Gold) : Beauty & Personal Care
$169
TheraICE Migraine Relief Cap
$29.95
Temperbreeze Prolo Pillow
$219
Sleep Hacks for EDS
7 products
Life Hacks for EDS
34 products
Household
5 products
Beauty
8 products
Compressionwear
6 products
Bracing
10 products
TheraICE Knee Ice Pack Wrap Compression Sleeve, Reusable Gel Cold Packs
$29.95
LMNT Zero Sugar Electrolytes - Sample Pack | Drink Mix | 8 Sticks : Health & Household
$14.99
Heating Pads
3 products
Lymphatic Drainage/Edema
11 products
Beckham Hotel Collection Down Alternative Pillow
$67.97
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