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Willis Family Statement
Willis Family Statement
FTD Info & Resources Read About Emma's Book Tour
AFTD’s 2025-2028 Strategic Plan
AFTD’s 2025-2028 Strategic Plan
Together, we can improve the FTD journey. Click on a priority area to learn more.
AFTD's 2025 Impact Report
AFTD's 2025 Impact Report
My FTD journey began more than a decade ago, when my mother, Theresa Bryant, started showing signs that something wasn't right. Once warm and outgoing, she
AFTD's Main Links
What is FTD?
What is FTD?
Short for frontotemporal degeneration, FTD is the most common form of dementia for people under age 60. FTD represents a group of brain disorders caused by degeneration of the frontal and/or temporal lobes of the brain.
FTD & Genetics Overview
FTD & Genetics Overview
Frontotemporal degeneration (FTD) is a group of disorders that can cause progressive changes to behavior, personality, language, and/or movement.
Newly Diagnosed with FTD
Newly Diagnosed with FTD
You or a loved one has been diagnosed with a form of FTD. What’s next? Too often, people receiving an FTD diagnosis have been told that there is nothing they can do, and that there are very few places to turn to for understanding and support.
AFTD Support Groups
AFTD Support Groups
"I went to the FTD support group for the first time last night and came back feeling so much better…with so many answered questions. I now feel like I'm
Comstock Grants
Comstock Grants
FTD imposes a severe economic burden on persons diagnosed and their families. AFTD offers Comstock Grants as direct assistance to people in the FTD community.
Helpful Resources
Helpful Resources
Call 866-507-7222 or send an email to
[email protected]
for answers to your FTD questions. Staffed by social workers, the Helpline can provide more
FAQs
FAQs
Diagnostic visits can be challenging to confront for the person diagnosed and their care partner. But a comprehensive neurological evaluation is necessary to
Advocacy Action Center
Advocacy Action Center
Advocacy is vital to ensure that the voices of people living with frontotemporal degeneration (FTD) and their families are heard by decision-makers. By
Volunteer Opportunities
Volunteer Opportunities
"I just want my wife's death to FTD to mean something, and I'd like to give back so more people understand this disease."
Ways to Participate in Research
Ways to Participate in Research
Scientists are closer than ever to breakthroughs that will bring meaningful change to families facing FTD. Participation from the AFTD community makes their
For Researchers
For Researchers
Subscribe today today to receive AFTD's FTD Research Spotlight in your inbox six times a year! Each issue includes FTD funding opportunities, the latest
For Health Professionals
For Health Professionals
The diagnosis of FTD requires a thorough history, verified by a caregiver, and a neurological examination unless a genetic cause is known.
Employment Opportunities
Employment Opportunities
The Association for Frontotemporal Degeneration (AFTD) seeks an exceptional leader to serve as its next Chief Executive Officer. The successful candidate will
AFTD Store
AFTD Store
Shop AFTD publications and awareness items.
Support AFTD's Mission
Support AFTD's Mission
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Events & Fundraisers
With Love 2026
With Love 2026
AFTD considers With Love to be our starter campaign because of its open-ended, easily customizable, and virtual nature. You can create your own fundraising
AFTD Advocacy Webinar - January 28
AFTD Advocacy Webinar - January 28
AFTD 2026 Education Conference
AFTD 2026 Education Conference
AFTD 2026 Race Season
AFTD 2026 Race Season
AFTD Independent Events
AFTD Independent Events
Blog & Articles
From Sean 1.0 to Sean 2.0: One Couple's Journey with FTD
From Sean 1.0 to Sean 2.0: One Couple's Journey with FTD
Hope on the Horizon: Daniel Barvin's Personal Mission to Transform FTD Treatment
Hope on the Horizon: Daniel Barvin's Personal Mission to Transform FTD Treatment
Our Deepest Gratitude to Dr. Walter Koroshetz
Our Deepest Gratitude to Dr. Walter Koroshetz
AFTD and partners award $2.1 million in first year of new FTD Diagnostic Biomarkers Initiative | AFTD
AFTD and partners award $2.1 million in first year of new FTD Diagnostic Biomarkers Initiative | AFTD
AFTD’s New Genetic Counseling and Testing Recommendation
AFTD’s New Genetic Counseling and Testing Recommendation
View all AFTD News
View all AFTD News