Posts tagged blog

I think I’m feeling grim lately over having had to explain to someone recently how bad it is when you need to rely on systems like disability and snap and so on for survival. In my experience the people directly interfacing with the public in these roles are…not good at that. They are pointedly unkind. They have missed no opportunity to insult me for having a university degree and being disabled. It is degrading and I’m pretty sure it’s working as intended. If I had an option I would walk away, but I can’t, because I need to eat and I need to live. But I’m sure plenty of people who need the help do walk away. And I wonder what happens to them.

It’s like the complex, sometimes award-winning, life changing things I’ve done and made and accomplished in my life mean nothing. It’s not enough to sustain a life. My education means nothing. Any contributions I may have made to society do not matter anymore, because I’m poor and disabled. And that’s the system. It is this way because someone wanted it to be this way. Someone calculated how to exact cruelty on a soul-crushed population under the guise of “preventing fraud” or some utter bullshit and here we are.

I am tired all the time and it takes so much effort just to get a basic amount of (inadequate) rest. I am tired of living with the background noise of “ope, snap’s turned off again,” a day before grocery shopping, again and again. We got it back but once again it’s a case where someone literally did not click a button two months ago and it took three or four phone calls to get here. I’m tired. I’m tired. I want to live in a house that’s not full of rats and mold and leaks. They just didn’t click a button. There’s no consequences.

I feel like I used to be a person and I don’t know what I am anymore. Not in a “tying my worth to my work” way necessarily, but even the things I’m proudest of don’t count for anything in the grand scheme. And it hurts.

A new thing for the new year: Delade talked me into starting FF7 (the original, not the remake) for the first time ever and so we’ve been picking at it in bits and bites over/after dinner some nights.

Someday I’ll understand all the jokes and memes! Despite wanting very badly to be silly, I am leaving the default character names so I know who’s who.

My entire experience with Final Fantasy is a small bit of X (because my system won’t read the disc past that point - any copy of the disc) and Kingdom Hearts which only counts debatably, I would assume.

Hmm, 2026. I haven’t been into making resolutions for a few years now, but I do have a few hopes.

2025 was a mixed bag for me health-wise, a lot of ups and downs and every time I think I got the hang of this stuff, I feel like the floor drops out from under me and I gotta start again. Still, I’ve been working on ideas to help me do more “normal” things. A lot of it relies on moving or having funds for equipment, but… At least it isn’t impossible. I can’t express enough how bad your life gets messed up when you have EDS/POTS & co., and you finally reach a stage in life where your body just can’t do it anymore. It’s….a lot.

I want to create more in 2026. I’m getting my comic life together, slowly. You don’t realize how much drawing really is a full-body experience until your body is made of knockoff connective tissue from Temu and holding yourself up is a struggle.

Still. Beyond drawing, I’ve got *two* ideas for some fiction I want to do and maybe publish. I can handle writing laying down if I have to. Drawing is harder. The characters for one of these stories are beating down the door in my brain so, I probably should give them some attention.

I want to keep learning about myself this year. My genes are a mess apparently and that’s just how it is, but man. Genetics are fascinating, as is biology on the whole, and I’ve learned so much this past year alone about how all these little processes inside me function (or don’t) and a lot of new research has come out recently. It’s obviously useful to me but maybe I can make some kind of interesting informational creative something to share it. We’ll see. I already have to know so much to be able to explain to underinformed providers what my deal is anyway, might as well take it further and learn a whole bunch more. Science ahoy, anyway.

I hope we’re able to move to a place of our own this year. There are a lot of reasons for this. But it’s time and it’s necessary and I have to find a way to make it happen somehow. I need a calm place where I can really rest my body and work on getting it stronger and healthier. I need a cat again. The house is so quiet and empty without one.

Anyway. These are just some loose aspirations. I’m going to keep doing my best in 2026, and I hope you will, too.

I was awoken this morning by the sense of something jumping up into the bed by my feet the way my cat always did. And it was so convincing I was immediately completely awake and had to really look and be sure he wasn’t really there. It’s been two years and I don’t think I will ever get over losing my cat.

I’m not religious, maybe vaguely spiritual at best in the sense that I could believe there might be phenomena we can’t observe or understand presently, though it’s pretty unlikely by all evidence, but this is one of those moments where I’m fully convinced that not everyone leaves forever when they pass.

Confirmation bias, probably, but at least it’s comforting.

Pokémon ZA is one of the things holding my brain together lately. It is not a perfect game by any stretch but I do like wandering around with my little dudes and the delightful noises their paws make on the pavement. Jolteon is my best pal and so good at blasting things with Thunder.

I also appreciate how the NPC dialogue is definitely written for an older age group. It is fantastic and hilarious.

I’m gonna do a photo dump with screenshots at some point or other. I’ve been taking tourist photos. Best feature.

It does make me miss the old LJ Pokémon trading community I was in way back when. It was big enough to get good trades but small enough to not be like, a brawl over things. People were kind. I still have a bunch of the Pokémon I got from there! I keep thinking about looking for a discord or something but like. I want to hang out with nice people. Joining new discords always makes me worry, ugh. It’s not the saaaaame.

Begging, begging my sleep meds to do their job already. I feel like I take enough of this stuff to knock out an elephant, or at least a medium-sized horse. I should be blissfully unconscious by now.

A nurse once observed that I metabolize drugs really quickly, so I don’t tend to get the hangover effect from sleep meds. Which on the one hand is nice, but on the other, every time I have a night like tonight I have to wonder if they just metabolized straight on through, did not pass go, and didn’t do their job.

It could also be anxiety because the plumbing is not functioning again and the washer is full of sewage and so we can neither flush, wash dishes, or shower until this is resolved. For the second time this year.

If you pray or cast spells or literally anything, please put in a good word with your chosen deity for me so that maybe we can get out of here in the coming year. I will make it up to you in art or something, I don’t know. I am so tired and unwell that I am scared it might never happen because continuously researching what assistance might (usually isn’t) available is exhausting.

I am oh so slowly cooking up a new pngtuber so I can get back to streaming, and maybe get a little bit of social interaction here and there since I don’t get much these days. I am excited. I want to talk more about it but I also want it to be kind of a surprise.

I have no idea how long this will take.

I want to find anyone doing research on like, video games and flow states. Or flow states and meditation.

I’ve concluded that something about shiny hunting in Pokémon SV is exactly right in turning all the thoughts in my brain off. The steps are automatic. I can just not think for a while, and it’s nice. Regular meditation doesn’t work especially well for me for whatever reason. I’ve tried different variations and it’s not my jam.

I did some reading on these sorts of things in college, but I gotta find something more up to date. It’s fascinating.

I was perusing through Messenger pages earlier for a thing and man. I can remember the intensity of working on these and just cranking out pages and pages.

Mostly health issues knocked me off being able to keep up, and also some people who said some really unkind shit to me and just made it really hard to keep going. It just drove me to exhaustion.

But I want to keep going. These characters deserve their ending.

Where would I be now if I hadn’t let it grind me down?

That’s a question for an alternate universe Bug, I guess. :(

:3