Personal Fundraisers
Our community of fundraisers leverages their personal networks to support our mission to serve the entire Fragile X community to live their best lives.
Current Fundraising Campaigns
Individual fundraising campaigns are driven by families, friends, and loved ones united by a shared commitment to making a difference for the Fragile X community. Whether you’re honoring someone special, celebrating a milestone, or inspired to give back, your efforts support families affected by Fragile X syndrome and the Fragile X premutation—making an impact starting today.
If you have any questions about how to set up a personal fundraising campaign or event, please contact Kristin at kristin@fragilex.org.
Aaron plans to walk 2 miles a day (Monday-Friday) during the months of May, June, and July, 2026. That’s a total of 50 walking days @ 2 miles per day for a total of 100 miles!
Your gift in support of Aaron helps raise awareness, speed up diagnoses, and support life-changing research for Fragile X syndrome and the Fragile X premutation.
Joey Christoff started the Fishing for a Cure tradition in 2014 in honor of his son, Mitchell, who has Fragile X syndrome, and for his wife and mother-in-law, who are carriers at risk of Fragile X-associated disorders. So far, this beloved event has raised more than $102,000 for Fragile X advocacy, education, research and treatment.
What will you do for Fragile X? Join a community of volunteers who are raising awareness, building momentum, and making a meaningful difference—while having fun along the way.
Starting your own fundraiser is simple. Choose a challenge, activity, or personal goal, and turn your passion into impact—helping ensure individuals and families affected by Fragile X have the brightest possible future.
Support the NFXF in Honor or Memory of a Loved One
You can start your own fundraiser, and what better way than in honor or memory of someone important in your and your family’s lives. Start your memorial fundraiser.
Looking for a specific fundraiser? Search memorial fundraisers.
Help the David Miller family honor him and their mother, and are asking for donations to NFXF in lieu of flowers.
Help the family of Marilyn Kelly, an amazing wife and mom, honor the memory of “Nana.” Read their story.
Fundraising Resources
Fundraising Fact Sheet
A one-page fact sheet on how you can make an impact on our mission.
Fundraising Toolkit
Easy-to-follow steps on setting up your own fundraising team or page.
X Strides 5K Toolkit
A how-to guide for planning and fundraising an in-person walk or run (or your favorite) event.
Start Your Memorial Fundraiser
It’s easy to set up and takes just a few minutes.
Start Your #AnythingForFragileX Fundraiser
Join the movement, create your own unique fundraiser, and make a difference for the Fragile X community.
Event Recaps
Read all about previous community events and fundraisers.