❀ still here in 2025 ❀
my medical stuff
  • this is mainly for if you want to reach out to someone with similar problems. i am not a medical expert. i’m just sharing stories about my shit health.

    just your normal myopia: -4,25 and -3,75

    scoliosis + hyperlordose + bws-kyphose

    > diagnosed 2011
    > 4 years of a medical corset
    > 1 year of physio therapy after which i refused to continue going

    chronic stage iii lyme disease (treated, not cured)

    > diagnosed 2012
    > 3 weeks of rocephin via iv
    > some side symptoms: herxheimer (currently not active anymore, often acutely treated wiith doxycyclin in the winter), potentially my epilepsy, potentially my heart problems

    juvenile myoclonic epilepsy (medicated)

    > diagnosed 2014 at age 15
    > on levetiracetam (currently from biomo, formerly from actavis)
    > also adjusted to lamotrigin for transition later
    > 2 tonic-clonic seizures
    > some current side symptoms: tinnitus, decreased sense of smell, absence seizures

    av block ii type 2* (loop recorder)

    > diagnosed 2014
    > loop recorder insertion 2017 -> battery officially dead as of 2021
    > *this is what i was told for years but then in 2017 i was told they hadn’t actually tested if i had type 1 or type 2. i refused the test
    > some current side symptoms: problems running and swimming, inclines

    adenomyosis (pain management, untreated)

    > officially diagnosed 2021, but known for years
    > not treatable due to conflicts with my epilepsy
    > current symptoms: nausea, throwing up, fainting, dizziness, extreme fatigue, fever, severe cramping

    pcos (not doing anything about this rn)

    > surprise bonus diagnosis i got while being examined for endo! fun times
    > yh i dont actually rly have a lot of symptoms tbh actually? my skin isnt great but its fine, my period has always been all over the place, thats about it woo

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