Activist Sean Saifa Wall is an unapologetic Black voice in the intersex community. The 38-year-old was born with androgen insensitivity syndrome (AIS), one of a variety of intersex conditions in which a person is not distinctively male or female. He said his activism is fueled by anger and love.
“Anger at what was done to my body without my thorough informed consent, and love for what remains of my body and to protect a future generation from those violations,” he told NBC OUT.
The advocate speaks out against surgeries on intersex children, commonly performed to remove their reproductive organs or alter their genitalia to make them look more distinctively male or female. It’s something Wall has experienced first hand.
“I draw a very distinct parallel between how the medical community has inflicted violence on intersex people by violating their bodily integrity, and how state violence violates the bodily integrity of Black people,” he said.
“I think I’m a survivor of medicalized violence. I think I’m a survivor of state violence, because my dad went to prison,” he said.
While Wall was dealing with the trauma of his father’s death, he was also dealing with a sense of dysphoria over her gender identity. “Woman” just wasn’t an identity that felt right to him. Years later, when he was in college, he looked up “testicular feminization syndrome” online and began learning about AIS, which he didn’t even know he had. He realized the “gonads” described in his medical records were actually male testes.
“I really just started to put things together,” said Wall. “All of my visits to the doctor, what happened when I was 13, all of it started coming together to make sense. And I think that’s when I was just really overwhelmed. I felt feelings of shame. I felt like a freak, but I also felt betrayed because I was like, ‘Why didn’t anyone tell me this?’”
“My desire for intersex liberation is totally intwined with Black liberation. They cannot be teased apart,” Wall concluded.
OutFront: An Unapologetic Black Voice in the Intersex Community by Julie Compton for NBC News (2016)