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(cw for food quantity/eating/weight gain+loss discussion)

Something that I feel needs to be acknowledged in discussions about healthy attitudes to food/eating is that the physiological feedback loop for hunger/satiation varies dramatically between different individuals to a degree which I think is wildly underestimated by those who sit within a range that leads to normative social and health outcomes.

I often encounter people who will describe earnestly how they forget to eat, how they hate “having to think about making sure they eat enough food”, who will be unable to continue to eat a meal after consuming what to me seems like a fairly small portion. These are often the same people who will talk about the importance of intuitive eating, of obeying hunger cues, of the idea that any form of dietary restriction is potentially disordered.

And broadly maybe those are good ideas to believe for most people. But I’m also just not sure those people are prepared for the amount that I would eat if I let myself follow my body’s hunger cues until I reached natural satiation. I know, because I lived that life, and combined with an inactive lifestyle and seemingly slow metabolism it lead me to continuously gain weight through uncontrolled overeating for most of my 20s down a path that was leading to catastrophic social and health consequences. I managed to reverse course solely through access to GLP-1 agonists, that I expect to be paying for at an exorbitant cost for the entirety of the rest of my life, solely so I can bring my hunger response within shooting distance of what seems to be the standard range for many of those around me.

Even now if I let myself eat without thinking I’d easily be topping up to approaching twice the typical food intake of some of the people around me. The filling meals that some eat would barely take the edge off what my body wants from me, “forgetting to eat” is anathema, food is a constant magnetic pull. I have to put considerable effort in to prevent constant snacking, to buy low calorie (at even more cost!), to hold back on impulse eating throughout the day just to tread water at around energy replacement levels. It sucks and it’s hard, but unfortunately I’ve learned that it’s necessary to a certain extent, in order to maintain my current life and lifestyle.

And so it galls me when somebody shakes their head and tells me I am exhibiting unhealthy and harmful behaviors, when they will happily go out their day without thinking about food after eating a small sandwich at lunch and a little curry for dinner, when their body has stayed within the socially normative range without effort their whole lives. Don’t you tell me what’s healthy or good for me if that’s been your experience.

(It’s been even harder since I was forced to switch to less good meds. Constant mental battle. I might need to look into even more options to curtail hunger honestly)

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  • 2 days ago
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So my most recent weird medical thing is that there’s something so fucked with my autonomic response - or maybe with my chest anatomy - that I can accelerate my heart rate to up to 160 bpm at “rest” simply by getting in particular postures (usually lying prone) and inflating my upper lungs. It’s like I feel my lungs clamp down on my heart and it goes sort of ballistic, like pressing a button.

I keep throwing this result at doctors and being like, “hey, uh, what’s up with this? Is this some exaggerated ‘normal’ vagal or pressure response or am I actually inducing tachycardia via some sort of electrical arrhythmia when pressure is applied to the right part of my chest? Could this be dangerous or imply the potential for other triggers to fuck with my heart?”

It’s amazing the capacity that people, even (or, especially?) doctors have to just outright disbelieve or choose to misinterpret what I’m describing with this, even when by this point I have multiple home ecg tracks showing this behaviour. But even when I manage to convey successfully what I’m describing, the ability for doctors to just sort of shrug their shoulders of anything that doesn’t sound like a standard symptom is pretty infuriating.

Anyway, I don’t think I’m actually a Yogi monk who has mastered total control over her heart rate by accident, I’m pretty sure this is not a reflex that occurs in other people to the same way to this extent, and I’d really like to know what the hell is up. So I’ll keep pushing I guess.

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    • #medical cw
  • 3 months ago
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not-terezi-pyrope:

not-terezi-pyrope:

The inevitable position of having something Definitely Not Right with your body, but not being about to give doctors anything specific enough that they will send you for tests that will pick it up.

Really I know that all the generic bloods and metrics are showing normal in a few snapshots but I wish the medical sysyem hadn’t over-optimised and over-specialised it’s way into a position where you can’t walk up to the guy you know has access to more diagnostics and shake them by the white coat until they’ll take a look at you.

It’s scary but it’s almost funny at this point. I have no idea if some of the things going on with my heart and lungs are dangerous but I’m sort of having to just laugh in the face of that possibility because it keeps being a thing and there keeps being zero recourse on my end. I’m having to shrug and bear it to some really weird shit here while I keep being passed along the chain of shrugs when I attempt to talk to my GP surgery.

Doctors hate her: has a problem that can’t immediately be boxed!

Oh well, there’s a limit to how many recordings of irregular heartbeats and tachycardias people can be shown and still insist that I’m just having health anxiety (which, I mean, I am - because I’m genuinely not healthy, and it freaks me out!)

Struggling to keep up with my work because of worry and trying to push this forward. Really wondering if it will ever get easier again.

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  • 4 months ago > not-terezi-pyrope
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not-terezi-pyrope:

The inevitable position of having something Definitely Not Right with your body, but not being about to give doctors anything specific enough that they will send you for tests that will pick it up.

Really I know that all the generic bloods and metrics are showing normal in a few snapshots but I wish the medical sysyem hadn’t over-optimised and over-specialised it’s way into a position where you can’t walk up to the guy you know has access to more diagnostics and shake them by the white coat until they’ll take a look at you.

It’s scary but it’s almost funny at this point. I have no idea if some of the things going on with my heart and lungs are dangerous but I’m sort of having to just laugh in the face of that possibility because it keeps being a thing and there keeps being zero recourse on my end. I’m having to shrug and bear it to some really weird shit here while I keep being passed along the chain of shrugs when I attempt to talk to my GP surgery.

Doctors hate her: has a problem that can’t immediately be boxed!

Oh well, there’s a limit to how many recordings of irregular heartbeats and tachycardias people can be shown and still insist that I’m just having health anxiety (which, I mean, I am - because I’m genuinely not healthy, and it freaks me out!)

    • #not-terezi-speaks
    • #my life
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    • #medical
  • 4 months ago > not-terezi-pyrope
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The inevitable position of having something Definitely Not Right with your body, but not being about to give doctors anything specific enough that they will send you for tests that will pick it up.

Really I know that all the generic bloods and metrics are showing normal in a few snapshots but I wish the medical sysyem hadn’t over-optimised and over-specialised it’s way into a position where you can’t walk up to the guy you know has access to more diagnostics and shake them by the white coat until they’ll take a look at you.

It’s scary but it’s almost funny at this point. I have no idea if some of the things going on with my heart and lungs are dangerous but I’m sort of having to just laugh in the face of that possibility because it keeps being a thing and there keeps being zero recourse on my end. I’m having to shrug and bear it to some really weird shit here while I keep being passed along the chain of shrugs when I attempt to talk to my GP surgery.

    • #not-terezi-speaks
    • #my life
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    • #medical
  • 4 months ago
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Q:

try the beta blocker! it knocked out my mild arrhythmia and anxiety both. it's been years and only one dose tweak towards the beginning because it made me woozy.

Anonymous

More and more people are telling me these worked for them, so I’m excited to try!

Just concerned about side effects and interactions. But I can work with my doctors to get it right, and pause them if ever needed.

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  • 4 months ago
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Health shit

So the stuff with my heart for the past two months hasn’t been all in my head, or pure OCD/anxiety (although maybe that’s implicated in the cause).

image

Turns out I’m having heart ectopics (either PVCs, PACs or both). Sometimes dozens a day, and it’s an issue that seems to be getting worse. (This can be considered to be in the “normal range” for many people, but also those people mostly don’t feel when this is happening , and I very much do; sometimes these events can be quite violent).

Tl;dr: probably not actually dangerous, but very distressing, and I don’t like the potential lifestyle implications of trying to manage this if I go that route. More below the cut.

Keep reading

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  • 4 months ago
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It’s a natural consequence of the general tendency for even socially conscious groups to see it as broadly acceptable to reach for physical appearance and ability to insult others, despite the regressive implications of doing so, but - is genuinely infuriating how much the things that people are often mocked for are things that require specifically money more than effort to solve. Clothing is the classic one and “bullying the poor kid for not having the designer brand” is a clichéd example at this point, but I’d like to also point to bodily health/aesthetics.

Sure personal grooming is more accessible and as such makes sense to take pride in, but - “haha, such and such has bad teeth”? A dentist costs money, braces and whitening costs money. You can brush your teeth all you like day of your life and your teeth will still be more strained than John Sweettooth who can afford better dental services. Bleaching is just as much of a class status symbol as having the latest Vans or whatever. (And also arguably somewhat of a culturally imperialist standard given how much the “Hollywood smile” was pushed as a body ideal by US cultural hegemony in the media, per my understanding).

    • #not-terezi-speaks
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    • #hygeine
    • #culture
    • #class
  • 9 months ago
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Hello! I'm Julia, aka Blackhole, aka Not-Terezi-Pyrope. Formerly a long-time Homestuck blog, now this is my personal and general fandom blog. Andrew Hussie had their finger on my blog title for over a decade; it has now been gracefully ceded to Chris Corner.

Content warnings: Blog is rated 18+, and so am I. Artwork is largely untagged. There is occasional violence and nsfw depictions in artwork, and frequent engagement with adult, triggering and nsfw topics; these often are tagged but not universally so. If you think anything I'm likely to post is something you might not want to then you probably shouldn't be following me.

Pronouns: She/her. I'm a bi trans woman in my late 20s. See my pinned about me or my /about page for more.

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